Thursday, April 18, 2013

Why I've decided to make this and a timeline

Since we've been dealing with a long and no-end-in-sight battle with alopecia, I have decided that I need to put my thoughts somewhere.  I don't know if anyone will ever find this and be helped by it or not, and I don't know if I care.  It is a tough thing to go through and deal with and I just needed to put my anxiety and frustration somewhere besides my head.
Alopecia is defined as an absense of hair.  But there's a bit more to it.  It is an autoimmune disease where these lymphocites attack the hair follicles as if they were a disease.  They attack them so much that they fall out.  It can be anything from small round patch as small as a dime to the whole head, or even the whole body.

A Timeline:

April 28, 2010: My wife and I are expecting our first baby after some fertility treatments [Lesbians like us need those, you know. :]  Yay!  Ironically this is the same date of my dad's death only 3 years prior.  This is why I can even recall the date.  We later find out that it's a boy and I am as excited as anyone could be.  We knew we wanted more than one child, but I really wanted a boy first.

January 8, 2011:  Our little man decides to make his way into the world.  He is the cutest thing ever and his cheeks are bigger than the rest of his body.  Right from the start, he is the easiest and sweetest little baby.  [He still is!]  He is born with a little bit of hair.



September 2011: We are able to use shampoo on his "full head" of hair! It was thickening into these really cute blonde locks that would curl when they were wet.

November 2011:  His hair starts to thin a bit.


December 2011: Hair starts to rapidly fall out and most of his curls are gone
 
 
January 2012: First birthday photos.
 

March 2012: Most of his hair is gone now. What is left is wirey and poofy.  He probably became a full-on q-ball in April.


October 2012:  Not everyone can get their head painted! :]
January 2013:  A current photo with mister and sister!  Still a nice little q-ball and the sweetest little guy!  :]
 
 
 
 
So that brings us to current day.  Since that last photo was taken, he has some eyebrows and full eyelashes.  He is a normal 27 month old, just bald.  He has tantrums, goes to gymnastics, has best friends, laughs at everything, chases our dogs, hugs and kisses his mommy's and sister constantly, uses the potty, pretends his dinosaurs are babies, etc.  He does the same stuff - just bald. 
I will elaborate later on what our journey has been like so far.  Emotions, fears, and general alopecia life.


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